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Lucca, Italy, March 13-14, 2008
Viral Hepatitis Prevention Board
European Liver Patients Association
Meeting
Thursday, March 13, 2008
Session 1 Opening and objectives
Chair: Pierre Van Damme - Nadine Piorkowsky
09.00 - 09.30
Session 2 Viral hepatitis prevention in Europe
Chair: Pierre Van Damme - Nadine Piorkowsky
09.30 – 10.00
Update on prevention and control of hepatitis B in WHO European Region. 1Mb (.pdf)
Liudmila Mosina (WHO/EURO)
Session 3 Role and impact of patient and advocacy groups
Chair: Daniel Shouval – Paolo Bonanni
10.00 – 10.30
Prevention and control of viral hepatitis; the role and impact of liver patient groups in Europe: general considerations. 309Kb (.pdf)
Nadine Piorkowsky (European Liver Patient Association)
10.30 – 11.00
European patient groups for rare diseases. 810Kb (.pdf)
Michele Lipucci di Paola (European Organisation for rare diseases)
11.00 – 11.20 Coffee Break
11.20 – 11.50
Prevention and control of viral hepatitis in the US; the National Viral Hepatitis Roundtable. 1.3Mb
Deborah Wexler (Immunization Action Coalition)
11.50 – 12.10
Luc Hessel (European Vaccine Manufactures)
12.10 – 13.30 Lunch
Session 4 Role and impact of patient and advocacy groups: country presentations
Chair : John Ward – Selim Badur
13.30 – 13.50
Belgium: Carrefour Hépatites-Aide et Contact // Vereniging voor hepatitis C patienten. 946 Kb (.pdf)
Muriel Colinet // Marie-Fabienne Van den Berghe
13.50 – 14.10
Bulgaria: Hepasist. 5.9Mb (.pdf)
Stanimir Hasurdjiev
14.10 – 14.30
Croatia: Hepatos. 356Kb (.pdf)
Tatjana Reic
14.30 - 14.50
Germany: Deutsche Leberhilfe. 54Kb (.pdf)
Achim Kautz
14.50 – 15.10
Italy: EpaC. 635Kb (.pdf)
Ivan Gardini
15.10 - 15.30 Coffee Break
15.30 – 15.50
Poland: Prometeuze. 75Kb (.pdf)
Ilona Sikorska
15.50 – 16.10
The Netherlands : National Hepatitis Centre. 77Kb (.pdf)
Paula Van Leeuwen
16.10 – 16.20
UK: British Liver Trust . 470Kb (.pdf)
Sarah Matthews
16.20 – 16.40
US: The Hepatitis Foundation International. 62Kb (.pdf)
Thelma King Thiel
16.40 – 17.00
Advocating for immigrant communities at risk. 1.3Mb (.pdf)
Samuel So
17.00 – 17.10
Summary by the chairs and close of the day
Friday, March 14, 2008
Session 4 Role and impact of patient and advocacy groups: country presentations (continued)
Chair : Craig Shapiro – Wolfgang Jilg
08.30 – 08.50
France: SOS Hepatites, National Federation.
Pascal Melin
Session 5 Initiatives to get attention and increase awareness on prevention and viral hepatitis
Chair: Craig Shapiro – Wolfgang Jilg
08.50 – 9.15
The European Immunization Week. 857Kb (.pdf)
Liudmila Mosina (WHO/EURO)
9.15 – 09.40
World Hepatitis Day (WHD). 57Kb (.pdf)
Charles Gore
09.40 – 10.05
Hepatitis B priority area for European policy; Call for action by the European Parliament. 82Kb (.pdf)
Charles Gore
10.05 – 10.20 Coffee break
Session 6A ParalIel break-out session Group I
Chair: Steven Wiersma – Daniel Lavanchy
10.20 – 11.30
Topic: Identification of weaknesses; limitations and thresholds of impact of patients groups on control and prevention of viral hepatitis
Session6B ParalIel break-out session Group II
Chair: Françoise Roudot-Thoraval - David Goldberg
10.20 – 11.30
Topic: Identification strengths and opportunities of liver patients groups towards the control and prevention of viral hepatitis
Session 7 Feedback break-out sessions
11.30 – 11.45 Report of Group I
11.45 – 12.00 Report of Group II
12.00 – 14.00 Lunch
Session 8 Conclusions of the meeting
Chair: Johannes Hallauer – Nicole Guerin
14.00 - 15.00
Presentation of the VHPB meeting conclusions. 76Kb (.pdf)
David FitzSimons
15.00 - 15.30 Discussion
15.30 Close of the meeting